Leadership Advisory Committee

AGURCIA, MARIA DEL CARMEN
Honduras

Attorney MARIA DEL CARMEN AGURCIA joins the fight for hemophilia patients and their families in the midst of struggles within her family to care for her son HUMBERTO MEJIA who since birth has fought to survive his severe hemophilia and caring with her attention and advice to her daughter RINA MARIA, who is a carrier. Read More »

BENOIT DE GARCÍA, HAYDEE
Graduate in Education with a mention in Social Sciences
Founder and Ad Vitan President of the FAHEM Hemophiliac Support Foundation.

Since 1996, as a mother and grandmother of people with hemophilia, which has allowed me to get to know the national and international hemophilia community.
Member of the World Federation of Hemophilia, WFH, since 2000, Read More »

ESPINOSA CAMPOS, ISMAEL
Chile

With outstanding work for the hemophilia community since 2013, and in 2017 as President of the Chilean Hemophilia Society, Read More »

GAITAN FITCH, CARLOS
Unity and Development Brothers with Hemophilia
Mexico

Carlos is a sociologist, he has worked in organizations for hemophilia and coagulopathies in Mexico since 1992. He is currently director of the organization in the state of Jalisco. From 2001 to 2022 he was manager of the national patient registry of the Hemophilia Federation of the Mexican Republic (FHRM). Read More »

GARRIDO D. CESAR
President
World Federation of Hemophilia
Caracas, Venezuela

President World Federation of Hemophilia Cesar Garrido was born in Caracas, Venezuela. He has two sons, one of whom has hemophilia A, which was the impetus for him becoming a committed member of the bleeding disorders community. Read more »

JACKSON, MATHIEU
Montreal, QC, Canada

Mathieu Jackson is leader of the School of Partnerships at the Center of Excellence on Partnerships with Patients and the Public at the University of Montreal Hospital Research Centre. He has completed a Master’s degree in Foundations of Education at the University of Montreal. Read More »

ROBLEDO RIAGA, SERGIO
Doctor
Colombia

Physician with a master’s degree in health administration
Member of the league since its foundation (1974) and of the board of directors since 1996, scientific director from 2000 to 2013 and president since 2013. Read More »

ROTELLINI, DAWN
Chief Operating Officer
National Bleeding Disorders Foundation
Gibsonia, United States

Dawn has been a leader in the bleeding disorders community for many years. As a parent of a son with hemophilia, she founded the Rocky Mountain Hemophilia & Bleeding Disorders Association in Bozeman, Montana, served as its Executive Director, …. Read more »

SAFADI MÁRQUEZ, CARLOS
ONM Vice President
Argentina

Carlos Safadi Márquez is a lawyer and has been a member of the Hemophilia Foundation of Argentina as a volunteer for more than 25 years, when he came as a patient and joined the work teams. Read more »

SKINNER, MARK
President and CEO
Institute for Policy Advancement Ltd
United States

Mark Skinner, Washington, DC, is President/CEO of the Institute for Policy Advancement Ltd, specializing in patient-centered outcomes research. He is an Assistant Professor in the Department of Health Research Methods, Evidence and Impact at McMaster. Read more »

ANTONIO GÓMEZ CAVALLINI
General Coordinator of the Leadership Advisory Committee
Argentina

General Coordinator of the Coalition of the Americas, born in Buenos Aires Argentina, person with Hemophilia B. Married, has two children, Graduate in Political Science, Postgraduate Degrees in Public Fields, Project Management among others. Read More »

ISABEL SORONDO
Executive Coordinator of the Leadership Advisory Committee
Uruguay

With a solid career as a Social Worker and outstanding work in the Hemophilia Association of Uruguay, a leader in the fight for the rights of people with hemophilia joins us. Read More »