Women’s Committee

Our mission is to make visible, disseminate, identify and position the new role of women in the twenty-eight member countries of the COA.

Our purpose is to create a group of empowered women who, from different roles, permanently promote the rights of women with bleeding disorders.

Right: to treatment, to participation in negotiation settings, to representation in investigations, and to comprehensive care.

The Coalition of the Americas, with its Committee of Women with Bleeding Disorders, proposes work that visualizes the reality of women who go through this situation in America in order to develop and propose strategies that improve both their diagnosis and access to treatments. integral. The lack of precise data regarding the number of affected women, where they are located, what access to diagnoses and treatments is like, should be the first task to be proposed.

Thus, the next actions will have as their primary objective the construction of an AMERICAN REGISTRY OF WOMEN WITH CONGENITAL HEMORRHAGIC CONDITIONS (Hemophilia A and BVon Willebrand – Deficiency of rare factors: VII, X, XI, XII, fibrinogen – Thromboplasties: Sd Bernard Soulier , Glanzman’s thromboasthenia)

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Sorted Alphabetically by Last Name

BRITO DEL PINO, AMANDA
Uruguay

A symptomatic carrier of Severe Hemophilia A, she has two sons, one of them with hemophilia. Graduate in communication and marketing, Professor at the Catholic University of Uruguay. Read more »

BUTEMBERG VIEIRA, MAÍSA
Brasil

Volunteer since 2011 at the Brazilian Hemophilia Federation, Mother of a teenager with severe hemophilia A, Second Vice President of the Brazilian Hemophilia Federation. Read more »

LUQUE, ANTONIA
Social Activist, Defender of the Right to Health and Life.
Venezuela

• Volunteer (34 years old) Venezuelan Association for Hemophilia (AVH).
• Advisor to the health commission of the National Assembly and the IVSS, Read More »

MONTEROS RINCÓN, MARTHA
México

Mother of an adult with hemophilia and a carrier, Architect by profession. In 1990 she was the founder of the Hemophilia Association of the State of Mexico, her home state, and in 1991 she was one of the members who founded the national organization, the Hemophilia Federation of the Mexican Republic. Read more »

ONZI PIETROBELLI, TANIA MARÍA
Brasil

Mother of a person with Severe Hemophilia A. She was a teacher of the deaf in a public school for 25 years. Read More »

ROBERT, MARÍA BELÉN
Argentina

With a father with hemophilia, the relationship with this condition has always been with me. I have two children, Pedro and María Clara, both with hemophilia. Caring for them has given me the opportunity and desire to train and work in Hemophilia. Read more »

ROMO MARTÍNEZ, PATRICIA
México

Mother of a young adult with hemophilia, and two female carriers. Public Accountant by profession. Co-founder of As. Potosina de Hemophilia A.C. in 1995 for which I have been a volunteer for almost 30 years. Read More »