Isabel Sorondo

ISABEL SORONDO
Coordinator of National Member Organizations
Uruguay

With a solid career as a Social Worker and outstanding work in the Hemophilia Association of Uruguay ????????, a leader in the fight for the rights of people with hemophilia joins us.

Carrier of Hemophilia A and mother of Juanfe, a child with severe hemophilia and inhibitors, her personal and professional experience makes her especially valuable to our team.

Currently, she is part of the COA Board, serving as Coordinator of National Member Organizations.

Member of the Board of Directors from 2015 to date, holding positions of Member, Secretary, President, leading data analysis, lobbying and inter-institutional coordination projects.

COALITION OF THE AMERICAS:
Teaching workshops on report preparation and project design, for Civil Society Organizations of the Americas, linked to hemophilia.

PARTICIPATION AS AN EXPONENT:
Summit on Comprehensive Care in Hemophilia and Other Bleeding Disorders 2023. “Ask the experts: impact of the use of data in decision making.” BS.AS, ARGENTINA. WORLD HEMOPHILIA FEDERATION.

World Summit on Policies and Access to Treatment 2022. “Process for access to Emicizumab in Uruguay.”