domingo, mayo 19, 2024

María Belén Robert

María Belén Robert

MARÍA BELÉN ROBERT
Project Coordinator
Argentina

With a father with hemophilia, the relationship with this condition has always been with me. I have two children, Pedro and María Clara, both with hemophilia. Caring for them has given me the opportunity and desire to train and work in Hemophilia.

My work focuses on creating and sustaining opportunities for everyone, opportunities for access, support and adequate treatment in hemophilia, always making present the voice of those of us who experience this condition.

Professionally as Director of Initial Level – Official Educational Establishment Ministry of Education Cba.

In hemophilia and coagulation disorders, since 2015 I have been working as President of the CÓRDOBA SUBSIDIARY – Argentine Hemophilia Foundation, in 2021 as a Member of the Board of Directors of the Hemophilia Foundation, Participation in various workshops, symposiums of the World Federation of Hemophilia.

Project manager “The Unseen Life” Stories of Women Carriers of Hemophilia in Latin America.

Member of the Committee of Women with Bleeding Disorders – CoA and as Project Coordinator for the CoA