{"id":2154,"date":"2024-02-17T01:50:29","date_gmt":"2024-02-17T01:50:29","guid":{"rendered":"https:\/\/www.coaliciondelasamericas.org\/eng\/?page_id=2154"},"modified":"2025-08-05T01:32:52","modified_gmt":"2025-08-05T01:32:52","slug":"together-program","status":"publish","type":"page","link":"https:\/\/www.coaliciondelasamericas.org\/eng\/committee\/together-program\/","title":{"rendered":"Together Program"},"content":{"rendered":"\n
\"Together<\/figure>\n\n\n\n

Hemophilia from its beginnings to the present has had a matrix centered on men because they are the ones who suffer from it the most, but in recent years this concept has been modified for various reasons, generating a more comprehensive view of the disease and including women as part of the spectrum to be analyzed.<\/p>\n\n\n\n

According to information from the World Federation of Hemophilia, currently women and girls only represent 4.5% of people identified with hemophilia, and not the expected figure of 30%, given that for every male with hemophilia there are 1.6 symptomatic carriers. About one in five women with heavy menstrual flow has an underlying bleeding disorder. However, underdiagnosis of bleeding disorders remains very common, with a median delay in diagnosis of ten years for women, and four years for girls.<\/p>\n\n\n\n

<\/p>\n\n\n\n

This reality needs to be modified with the drive to generate more active and visible roles from hemophilia patients themselves, who must be the spokesperson for each ONM and know the reality for themselves and through connection with other women in the same situation. Likewise, being a woman with hemophilia is not enough to be able to carry out some lobbying actions, generate projects and give visibility to the issue in each country; new tools and knowledge are required.<\/p>\n\n\n\n

It is in this sense that we, from the Coalition of the Americas, believe that it is an important challenge to carry out and that is why the Committee of Women with Hemophilia and Bleeding Disorders was formed a year ago. This Committee is made up of female patients or immediate family members who have the objective of giving visibility to this problem, training women leaders in the Americas with new tools and actively participating in events where this issue is present and together with recognized leaders. This will cause each one to plan actions in their Organization and influence public health policies in each country to improve access to certain medication, prompt diagnosis, improvement of records, etc.<\/p>\n\n\n\n

Participation objectives:<\/strong><\/p>\n\n\n\n

\u00b7 That the leaders of the region obtain the necessary tools at a practical level to carry out these debates and influence public health policies in each country.<\/p>\n\n\n\n

\u00b7 Recognize the limitations and challenges that each country and organization has on this issue<\/p>\n\n\n\n

\u00b7 Complement the virtual theoretical approach of the Workshops and Activities that both the WFH and the COA dictate, but in a practical, on-site experiential dimension.<\/p>\n\n\n\n

\u00b7 Identify the successful strategies that have been developed and executed by the NHF for the visibility of the topic.<\/p>\n\n\n\n

\u00b7 Share ideas and compare with the realities of different countries in the Americas.<\/p>\n\n\n\n

\u00b7 Generate the analysis of possible successful practical experiences in various organizations and study the application in each country of residence of the leaders.<\/p>\n\n\n\n

This program is supported by Hemophilia of Georgia and the National Bleeding Disorders Foundation of the United States collaborates logistically.<\/p>\n\n\n\n

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\"Hemophilia<\/a>
Hemophilia of Georgia<\/a><\/strong><\/figcaption><\/figure>\n<\/div>\n\n\n\n
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\"Together\"<\/a><\/figure>\n<\/div>\n\n\n\n
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\"National<\/a>
National Bleeding Disorders Foundation | NBDF<\/a><\/strong><\/figcaption><\/figure>\n<\/div>\n<\/div>\n\n\n\n

.<\/p>\n\n\n\n

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\"\"<\/figure>\n<\/div>\n\n\n\n
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ANTONIO G\u00d3MEZ CAVALLINI<\/strong>
General Coordinator of the Together Program<\/strong>
Argentina<\/p>\n\n\n\n

Born in Buenos Aires Argentina, person with Hemophilia B. Married, has two children, Graduate in Political Science, Postgraduate Degrees in Public Fields, Project Management among others. Read More \u00bb<\/a><\/strong><\/p>\n<\/div>\n<\/div>\n\n\n\n

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\"Amanda<\/figure>\n<\/div>\n\n\n\n
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AMANDA BRITO DEL PINO
Executive Coordinator of the Together Program
<\/strong>Uruguay<\/p>\n\n\n\n

A symptomatic carrier of Severe Hemophilia A, she has two sons, one of them with hemophilia. Graduate in communication and marketing, Professor at the Catholic University of Uruguay. Read more \u00bb<\/a><\/strong><\/p>\n<\/div>\n<\/div>\n\n\n\n

\n","protected":false},"excerpt":{"rendered":"

Hemophilia from its beginnings to the present has had a matrix centered on men because they are the ones who<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":2119,"menu_order":5,"comment_status":"closed","ping_status":"closed","template":"","meta":{"colormag_page_container_layout":"no_sidebar_content_centered","colormag_page_sidebar_layout":"no_sidebar","_coblocks_attr":"","_coblocks_dimensions":"","_coblocks_responsive_height":"","_coblocks_accordion_ie_support":"","_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"class_list":["post-2154","page","type-page","status-publish","hentry"],"yoast_head":"\nTogether Program - Coalition of the Americas<\/title>\n<meta name=\"description\" content=\"Hemophilia from its beginnings to the present has had a matrix centered on men because they are the ones who suffer from it the most..\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.coaliciondelasamericas.org\/eng\/committee\/together-program\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Together Program - 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