sábado, diciembre 9, 2023

Women’s Committee Program

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 Activity program
9:00 to 9:30Coffee – Registration
9:30 to 10:30Presentation of the activity and opening words
 Cesar Garrido. President of the World Federation of Hemophilia
 Carlos Safadi Marques. President of the Hemophilia Foundation of Argentina and VP of the World Federation of Hemophilia
 Antonio Gómez Cavallini. General Coordinator of the Coalition of the Americas and Institutional Coordinator of the Hemophilia Foundation of Argentina
 Martha Monteros. Coordinator of Political Affairs of the Coalition of the Americas and Coordinator of the Women’s Committee.
10:30 to 11:15Women and hemophilia from a medical-scientific perspective.
 Dr. Andrea Cocca. Hematologist at the Hematology Service of the Hemophilia Foundation of Argentina.
11:15 to 12:00Sexism in Bleeding Disorders: Hemophilia in women is unrecognized and underdiagnosed. New comprehensive approach.
 Daniel Aníbal Garcia. President of the Spanish Federation of Hemophilia
12:00 to 12:30Questions
12:30 to 13:30Lunch
13:30 to 14:00Case experience. National Registry of Women of Venezuela
 Antonia Luque. Member of the Venezuelan Association for Hemophilia.
14:00 to 14:30Experience of Spain: Awareness and Sensitization Campaign.
 Lourdes Perez, Director of the Spanish Hemophilia Federation and Laura Quintas, Vice President of the Spanish Hemophilia Federation and Coordinator of the Women’s space.
14:30 to 14:50Questions
14:50 to 15:00Coffee break
15:00 to 15:30Women and Bleeding Disorders: Accurate Diagnosis and Comprehensive Access to Treatment
 Dawn Rotellini. CEO of the National Hemophilia Foundation USA and member of the Executive Committee of the World Federation of Hemophilia.
15:30 to 16:00The importance of including women in the National Registries.
 Salome Mekhulza. Director of Global Development of the World Federation of Hemophilia.
16:00 to 16:30Questions
16:30 to 17:00Conclusions of the event by the Women’s Committee of the Coalition of the Americas.